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Elijah William Bonney
This is our
son, Eli.
Eli was born on May 10th, 1994. Eli died on October 31, 1995 of an incurable, genetic neurological disorder called Mitochondrial disease. His symptoms were nearly identical to a leukodystrophy.
We miss Eli more than we can ever express. In Eli's memory, we try and help other people who have children with similar diseases. We also raise money in the hope that someday there will be cures for diseases like the one he suffered from. Most of all, we go on, with "E" in our hearts.
We have written down a short history of Eli's story for those of you who might be interested. It may help someone out there trying to find what ails their child.
Poems and memorials:
Other pictures:
If you want to help organizations battling Eli's disease please give to the organizations listed below - their addresses can be found by clicking on their names below. We have been trying to raise funds for them all. In particular, we give funds to the doctor that diagnosed his disease.
Here are some other links that might help those of you who are searching for information on YOUR child's illness:
- United Mitochondrial Disease Foundation
- United Leukodystrophy Foundation
- National Organization for Rare Disorders
- The Myelin Project
- Child Neurology Web Forum
- Krabbes Disease Home Page
- National Network of Libraries of Medicine
- Rare Genetic diseases in Children resource directory
- Hines family - undiagnosed neurological condition
- Mitochondrial disease support group - LAST
- National Library of Medicine-for medical articles
- Internet Grateful Med - for medical articles
- Entrez - for Medline medical articles
- Exceptional Parent Magazine
Obviously, charitable organizations among the above can also use your financial support.
Other organizations that do not have web pages but can provide help.
Please let us know what you think of our web page...or if you want to discuss our experience with Eli's illness or ask for our help with your child, please contact us.