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Small Wonders ~ Preemie Place

Small Wonders ~ A Preemie Place


This is a place where you can find out about many preemie related issues:

This Page: Conor Michael Williams: In the NICU
Conor At Home: The First 3 Years
Conor's 3 Years Old
Preemie Weight: An informal study of preemie weights from birth to 5 years
Feeding & Preemies
Feeding Tips
Feeding Disorders in Preemies
Treatment for Behavioral Aspects of Feeding Problems
Preemie Links: Links to Other Great Preemie-related sites
Project D.O.C.C: A program where parents teach medical professionals what it's like to be a parent of a child with chronic illness. Learn all about it.
Thank You's: Our special thanks to those who helped us through a most difficult time in our lives.

No Bigger Than My Hand

[IMAGE]

The photo above is of my son,
Conor Michael Williams who was born 16 weeks prematurely
at 1lb, 3 oz.

He's called a 24 weeker. As a preemie who spent 20 weeks (5 months) in the Neonatal Intensive Care Unit, he faced many obstacles. He was given a 30% chance of surviving. He's a toddler now and doing very well despite a few medical issues.

Some of the medical problems that Conor had to overcome in the NICU, and which are very common in preemies born at this gestational age, include:

Intraventricular Brain Hemmorage - Conor had two IVH's (Brain Bleeds). The one on the right side of his brain was Grade 2, the one on the left side was a Grade 3.

Patent Ductus Arteriosus - an opening in the heart that failed to close at birth. This opening usually closes in the womb during a normal pregnancy, but because Conor was early, his did not. The doctors were able to correct this with drugs.

Retinopathy of Prematurity (ROP) -- a disease, of which the cause is unknown, that causes blindness. Conor had Stage 2 ROP in his left eye and Stage 3 in his right. We were fortunate that Conor's condition eventually resolved itself without requiring surgery.

Respiratory Distress Syndrome - Conor was on a ventilator for 6 weeks. He continued to need oxygen to breathe properly for another 4 weeks. He now has Bronchial Pulmonary Dysplagia (BPD) and asthma as a result of the damage caused by the ventilator.

Necrotising Enterocolitis (NEC) - a bacterial disease that attacks the intestines. Conor had NEC 3x's, but it was caught and treated with antibiotics early on, thus avoiding the need for emergency surgery.

GI Reflux - Conor has had continuing problems with reflux that have caused him to vomit frequently. The reflux caused him to develop esophogitis which is scarring and damage to the esophogus.

GU Reflux - A condition that causes his urine to reflux back into his kidneys potentially causing kidney damage. He was thought to be going into kidney failure twice while in the NICU -- there is nothing that can be done to save a baby this small if the kidneys fail.

Apnea & Bradycardia - These are epsiodes of the breathing and heart stopping. He regularly had minor drops in his breathing and heart rates. This was usually regulated with the ventilator and with drugs. However, Conor "crashed" while in the NICU quite a few times. It was so hard to see him turn grey and limp and watch doctors and nurses resuscitate him over and over again.

Conor continued to have these episodes even when he came home. Then we had two monitors with us at all times to let us know if he ever stopped breathing or if his heart rate dropped too low.

Anemia - Many preemies are unable to make their own red blood cells at birth. Conor was extremely anemic and required 10 transfusions. He was lucky to have his Dad, Uncle Bert and Aunt Mary donate blood for these transfusions.

Hernias - Conor had three inguinal hernias that were all repaired surgically. He also had an umbilical hernia that eventually mended on its own.

Infections - Conor had a few infections that were all fought off with antibiotics. What would be a "simple" Urinary Tract Infection for a healthy baby or adult, almost killed Conor. While he was in the NICU, he had to have three spinal taps to test for suspected menengitis.

[IMAGE]

This is Conor at 6 weeks of age.
It was the first time we ever saw his whole face or ever heard his voice. He had just had the ventilator removed and was breathing on his very own. It was a big day for firsts!!!! Believe it or not after 6 weeks he only weighed 1lb 10 oz.

The wires are for the heart and breathing monitors.

[IMAGE]

Conor on Christmas Day (3 days shy of 2 months)
We disconnected him from his O2 and monitors and took a quick family photo. We opened gifts with Conor at his issolette (incubator) at Midnight on Christmas Eve. He had just been moved out of Area 1 -- the area of the NICU with the sickest babies. However, he was moved back to Area 1 on New Years Eve due to a serious infection that almost killed him.

[IMAGE]

My How He's Grown!

This is Conor on his due date. He weighed a little over 4lbs. He was still not eating on his own, so he had a tube down his nose that went to his stomach so we could feed him milk. Conor came home 4 weeks later, he still had the monitors and the feeding tube.

Wonder

By Natalie Merchant

Doctors have come to see me,
From different cities,
Just to see me.
Stand over my bed, disbelieving, what they're seeing
They say I must be one of those Wonders of God's own creations
And as far as they see they can offer no explanation.
I believe fate smiled and destiny
laughed as she came to my cradle.
"This child will be able"
laughed as my body she lifted,
"Know this child will be gifted"
With love, with patience and with faith
He'll make his way.

Let me know what you think about my page. Send mail by clicking here.

For More on Conor or Other Related Pages Click Below

  • Small Wonders - Conor At Home
  • Small Wonders - Conor's 3 Years Old
  • Small Wonders ~ Preemie Weight
  • Small Wonders ~ Preemie Links
  • Feeding Preemies
  • Feeding Disorders in Preemies
  • Feeding Tips for Preemies
  • Treating Behavioral Aspects of Feeding Disorders
  • Small Wonder - Project D.O.C.C
  • Small Wonders ~ Thank You's










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