About the Logo:
The logo on the left portion of the header graphic was designed by Larry as a graphic
representation of the Washington, DC area to provide an "identifying mark" for CACS. You will find it on our brocure and other printed
material that is produced by and for the CACS.
About the Flag:
The American Flag that you see on the right hand side of our header is the flag that flew over Al's
1/14th Artillery Radar Operations Bunker in Vietnam in 1968. We think that this flag was still in
use by the unit in 1971 but do not know the disposition of it after that year. Just as it was a battle
flag then it remains so today. The CACS and it's members are engaged in a battle for their very
lives. This old battle flag remains a symbol of the fight for freedom. In 1968 the battle was for freedom from communism and in 2003 it is for freedom from Carcinoid Cancer.
About the our members:
Some approximate statistics on our members follow:
107 Group Members
65 Carcinoid patients
42 Partners
22 Male Noids
43 Female Noids
22 Male Partners
20 Female Partners
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CACS (Capital Area Carcinoid Survivors) is comprised of
people of all ages, from all walks of life, and from all over the Washington DC, Maryland,
Virginia, West Virginia and surrounding states to who have come together because of what we
have in common – we are surviving carcinoid cancer. Some of our members have only known of
their cancer for a few weeks, and others have been surviving for more than sixteen years. Our
goal is to support each other in times of crisis and struggle, and to celebrate as we share the challenges of survival. |
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The purpose of CACS is:
- To assist in providing empathetic support for fellow carcinoid patients and their
families.
- To create a forum for educating carcinoid patients and their families about detection,
treatments, financial resources and other resources, that may help both them and their
families to deal with the challenges of this disease.
- To educate doctors, the public and our elected representatives about carcinoid.
- To nurture similar support groups in neighboring regions and states.
- To focus on cancer-related issues that affect the quality of our lives, including
medical treatment, patient-doctor relationships, family and social life, insurance, employment
discrimination and consumer education.
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Mission |
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Hold monthly
meetings |
Hold monthly meetings to discuss our common concerns and interests, and to hear speakers on topics of interest to carcinoid patients, their families, and their caregivers.
CACS meetings are held on one Saturday each month from approximately 10:00 AM until
12:30 PM at the Life With Cancer Family Center ®
(http://www.lifewithcancer.org) which is located near Inova© Fairfax
Hospital in Fairfax, Virginia.
Directions will be found on the When and Where page of this website. |
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Organize a
public relations effort |
Organize a public
relations effort directed at newspapers, magazines, house organs, radio and television. Prepare materials for direct mail campaigns and hand delivery to oncologists. |
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Develop and
maintain a website to inform the
public |
Develop and maintain
this website to inform the public about our
support group (CACS) and to disseminate information about this rare form of
cancer. |
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Educate the
public and our elected
representatives |
Educate the public and
our elected representatives about carcinoid
by lobbying to ease suffering and find a cure for carcinoid. |
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Raise funds for
carcinoid research |
Raise funds for
carcinoid research. |
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Reach out to
non-English-speaking carcinoid
fighters |
Reach out to
non-English-speaking carcinoid fighters in the best
ways we can. |
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Help other
carcinoid support groups
organize |
Help other carcinoid
support groups to organize and thrive around the world. |
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Develop and
coordinate cooperation with other carcinoid
support groups |
Develop and coordinate
cooperation with other carcinoid support groups to facilitate addressing national issues -- including exchange of information, distribution of resources and lobbying. |
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Eliminate carcinoid cancer |
Our immediate, short term and long term mission is the complete elimination of carcinoid cancer around the world. |
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History |
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Almost anyone dealing
with carcinoid cancer in any way and for very long has heard of a wonderful lady by the name of Susan Anderson. Susan has had a web site for many years that has as one of its main features extensive information about carcinoid cancer and syndrome (see http://home.att.net/~S.L.Anderson/ ).
Those same people are certainly also familiar with a service provided by ACOR on the world
wide web. ACOR gives space to cancer support groups to conduct a list service.
Prompted by a lady by the name of Bea, on July 6, 2001, Susan Anderson posted
the following e-mail: |
From:S.L.Anderson
Sent: Friday, July 06, 2001 12:40 PM
To: Marisa; Larry; Bob; Bill; Ellen; Charlie; Susie; Bob; Lorri, BMSLS
Subject: Do you live in the D.C. area?
Hello fellow Carcinoid fighters or family members of Carcinoid fighters,
Could you let me know if you live in VA, MD, DC or that area so I
may set up a mailing list just for your area?
A lady, Beatrix that lives in Vienna, VA, called me yesterday.
Bea would like a Carcinoid group to form in the D.C. area. You have
nearer access to NCI, NIH and Congress. If you live in VA, MD, DC
or nearby and would like to talk about this idea and see what develops
please e-mail her at: rossmar@gateway.net (her sisters e-mail for now).
Hugs,
Sunny Susan in AZ
Sunny Susan Anderson.....in beautiful Tempe, Arizona, where the sun
shines more than 300 days each year, the sky is bright blue, the flowers
are always in bloom, and the birds are always singing!
It is a great day to be alive, count our blessings, and enjoy life!
Visit my homepage at:
http://www.carcinoidinfo.info or read "My Carcinoid Story" at
http://www.carcinoidinfo.info
Visit my husbands homepage with deep-space astrophotography and "how-to's" at:http://www.frontiernet.net/~handy13/ |
As a result of this posting, Bea received a number of e-mails from DC-area carcinoid
survivors and the rest is history. On September 22, 2001, nine people (some survivors and some
family members -- Bea, Ellen, Harry, Larry, Linda, Marisa, Mitch, Peg, and Vickie) met together
for the first time. This meeting was held at the Life with Cancer Family Center in Merrifield, Va.
(a block from Fairfax Hospital).
In subsequent months, the group has consistently grown and we have had to change meeting
rooms three times.
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