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Philadelphia, PA., Internet Support
For Invisible/Hidden Disabilities
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About the Group
The Philadelphia, PA., Internet Support Group For Invisible/Hidden Disabilities was formed in the early parts of September 2000 soon after receiving my DX for Ehlers-Danlos Syndrome (Hypermobility) in August 1999. Before the group stated to produce and publish the "Service Guides for Invisible/Hidden Disabilities" we offered assistance to others who suffered from various conditions, specifically Ehlers-Danlos Syndrome via the internet/support groups and message boards.
The groups goal is to offer all who visit this page to gain further insight into what is called an Invisible/Hidden Disability, and to further educate our City, State, Federal Officials and members of the Medical Community to better understand us, our needs and how each group can further assist us in our daily lives as proactive and productive members of society despite our various limitations.
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"Service Guide For Invisible/Hidden Disabilities"
We are currently encouraging all members of the Business Community, City Government, State Goverenment, Federal Agencies and the Medical Community to visit this page and to contact us to have the opportunity to learn from us and our perspective on what our lives are like everyday during this journey called "Life".
Currently we are offering the Service Guide For Invisible/Hidden Disabilities on CD, listed below you will find all of the necessary information that is contained on this years version of the Guide. This CD contains 14.6 MB of information.
CD Contents
Front Cover & Listing of Sites Visited
A Service Guide for Invisible/Hidden Disabilities
Statement & Disclaimer from Group Owner.
PGS# 2-7 Dedication to Kirk A. Woodson, MD., MS.
PGS# 8-9 Personal Dedication to Kirk A. Woodson, MD., MS.
PGS# 10 Celebration of Life Edson Duane "Dude" Assman.
PGS# 11-18 A-Z Complete Index of Web Sites.
PGS# 19-33 Complete Listing of Web Sites.
PGS# 34-42 970 Medical Terms made Simple.
PGS# 43 8 Fears of a Chronic Illness.
PGS# 44-52 EDS Photo Album.
PGS# 53-98 Articles of Interest.
PGS# 99-104 Templates ( Sample Letters ).
PGS# 105-108 Wheelchair Exercises.
PGS# 109-118 Thera-band Exercises.
PGS# 119-122 Service Dog Translations.
PGS# 123 Personalized Pain Chart.
PGS# 124-125 Pain Chart ( Compliments of the American Pain Foundations ).
PGS# 126 Back Cover ( Contributors / Supporters )
This CD will be available to all concerned parties in the early part of September 2005, and will be distributed to everyone who has an interest in learing more about the above information. All that I/we ask is once you have received your copy of the CD please share it with your friends, family, care-givers and the medical professional who assist in your on-going care.
We have and continue to address issues that affect patients with connective tissue disorders and to find the most up-to-date material possible to help us maintain our proactive & productive lives. In the event that you have any questions concerning this page you are more than welcome to contact me via e-mail or IM. Your are more than welcome to contact me for further details on how to obtain a copy of the CD.
We are presently and respectfully requesting from all interested parties any type of assistance in helping us defray the cost of making the CD's & hard copies of the guide would be greatly appreciated.
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Contact Me
Mr. Robert L. Heim, Jr., President
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My Favorite Links:
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