Welcome to Diana's World

Diana's World Owfw ~ Founded in 1997

~*Updated*~
Novemebr 30, 2003
September 13, 2005
November 25, 2005
August 14, 2006
August 19, 2006
September, 2007
Links Updated

This website offers Research & Resources for
ME/CFIDS FM PTF PPS MCS GWI and Related Disorders/Diseases

For more information google search DGSABA...

Patients, Doctors and Researchers unite!

The National CFIDS Foundation, Inc.
103 Aletha Road
Needham, MA 02492-3931
Phone: (781) 449-3535
Fax: (781) 449-8606
http://www.NCF-NET.org

The NCF Newsletter
The National Forum's Focus:
CFIDS/ME, FMS, GWI, MCS, and Related Illnesses

Memorial List
http://www.ncf-net.org/memorial.htm

Information Regarding Anesthesia
http://www.ncf-net.org/patient-physician.htm

*** "Please print a copy and be sure a copy is placed on all your medical charts at the hospital upon admission and in your charts at all MD office visits" ~ ***DS***

NCF Medical Discoveries
http://www.ncf-net.org/discoveries.htm

NCF Press Releases
http://www.ncf-net.org/pressreleases.htm

A Message from Gail Kansky, Editor of NCF
In a continuing effort to spread information about myalgic encephalmyelitis (ME) and chronic fatigue syndrome (CFS), The National CFIDS Foundation has agreed to send a free one-year subscription to your physician of choice. For those who wish their physician to receive a copy, just drop us a line or e-mail us ( our website has a link to e-mail us directly) with the name and full address of the physician you want to recieve The National Forum.

We can only send out one complimentary copy per member, so please don't send us a list of yor primary care physician, your allergist, acupuncturist, gynecologist, etc. We can only extend this free offer to ONE physician that you designate. Our writings focus continues to be for patients, but we know from other physicians that recieve The Forum that a lot of nformation is helpful to them as well. We're grateful to a member who prefers to remain anonymous for enabling us to offer this to our memebership. We're also grateful to another member for suggesting this important step. We take your input seriously.

For a cure,
Gail Kansky
National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931
http://www.NCF-NET.org

BREAKING NEWS

NCF Investigative Report - Part One:Unmasked Research and Part Two:Total Exposure

http://www.ncf-net.org/NCFresearch.htm

National CFIDS Foundation's
Children's Packet Available
A booklet, that has already been distributed to nearly 20,000 educators and school nurses across the United States free of charge, is available at our website to be downloaded

http://www.ncf-net.org

The NCF is the largest all volunteer, 501 (C) 3 not for profit national CFS organization. The NCF's mission is: 1) to fund research to determine the cause, to discover treatments and ultimately find a cure for CFS, 2) to raise awareness, increase visability and educate others regarding the nature, frequency and seriousness of CFS; and 3) to advocate on behalf of patients and the families of those who suffer from CFS.

I wish to personally thank Gail Kansky, Editor of NCF, all NCF Staff Members who volunteer their grass roots patient representative efforts, along with sincere thanks to Tom Hennessy, Jr. of R.E.S.C.I.N.D and Doc Elaine S. Katz of
C-FIDSERS. ***DS***

BREAKING NEWS
Co-Cure Daily Digest Excerpt:
See October 2003, week 3
http://listserv.nodak.edu/archives/co-cure.html

Detection of enterovirus in human skeletal muscle from patients with
chronic inflammatory muscle disease or fibromyalgia and healthy subjects.

CFSAC Meeting December 8, 2003

Please contact: Dr. Larry Fields, Executive Secretary, Chronic Fatigue Syndrome Advisory Committee, U.S. Department of Health and Human Services, Hubert H. Humphrey Building, 200 Independence Avenue, SW., Room 719H, Washington, DC 20201, to voice concerns for a patient represenative to be present at all CFSAC meetings.

Contact info ~ Dr. Larry Fields
Phone: 202-690-7694
Fax: 202-690-7425
Internet email: LEFields@OSOPHS.DHHS.GOV

Patients Need To Be Represented At CFSAC Meetings

November 14, 2003

Dr. Fields,

I would appreciate the CFSAC committee members inviting Jill McLaughlin, Executive Director of the National CFIDS Foundation, Inc., to speak and or participate on behalf of patients with CFS/ME, at the December 8, 2003 meeting and all future meetings.

NCF
The NCF is the largest all volunteer, 501 (C) 3 not for profit national CFS organization. The NCF's mission is: 1) to fund research to determine the cause, to discover treatments and ultimately find a cure for CFS, 2) to raise awareness, increase visability and educate others regarding the nature, frequency and seriousness of CFS; and 3) to advocate on behalf of patients and the families of those who suffer from CFS.

Patients with CFS/ME need a patient represenative present at this meeting and future meetings.

As Executive Director of the National CFIDS Foundation, Jill McLaughlin has proven time and time again that she is deeply committed to representing the CFS/ME patient community. Patients are not comfortable having no recognizable representation on the committee.

I thought that the "invited guest" status would be offered in all of the CFSAC meetings. If not, then I would like to request that the invited guest status continues.

It appears in the most recent CFSAC meeting that name change discussions were brushed aside. Patients all over America, Canada and Europe are supporting a petition to change the name. Please take a look at the Petition.
Petition A Call For Action

Currently, there are 6,282 signatures. Please read the patients statements.

I feel that the members of the CFSAC committee are not truely listening to patients wishes. Many patients are too ill to travel. Patients need and deserve to have a patient represenative present at all meetings.

I sincerely hope that you will do everything possible to see that the CFSAC committee members assure CFS/ME patients their needs and demands are being addressed.

Sincerely,

Diana Saba LPN
dgsaba@aol.com

~*~*~*Update*~*~*~

September 13, 2005

Jill McLaughlin is no longer with the National CFIDS Foundation, Inc. (NCF). In light of the emails and phone calls - I began receiving from Jill McLaughlin, I no longer support any interest in any continuing efforts requesting Jill McLaughlin to act as a Patient Representative or in any capacity that involves me. I, myself, am a disabled patient and no patient should ever have to be put through what I have been put through by telephone, from Jill McLaughlin.

Considering the internet history of events, since 2001, involving various other threats, my receiving screaming threatening phone calls from Jill McLaughlin, is totally, beyond compreshension at this time.

Jill McLaughlin inquired of me multiple questions. One included, did I think the National CFIDS Foundation, Inc., is a cult and other issues - regarding members of the NCF.

"I had to bluntly interrupt Jill McLaughlin. I asked Jill McLaughlin, "if you think the NCF is a cult then why did you not tell me this? Why have you spent 7 years representing the NCF, if you think this and now all of a sudden when there is a disagreement involving yourself and the NCF, you are just now telling all of this, to me?"

The telephone became very quiet. Jill stated to me, "I felt loyalty - to them."

In other phone calls from Jill, I asked Jill, if she was going to the CFSAC meetings as a Patient Representative, on her own. Jill laughed - a very disturbing cynical laugh - then stated, "I don't owe the patients anything."

I regret to inform the patient community, I was wrong to have requested Jill McLaughlin to act as a Patient Represenative.

My last telephone call from Jill McLaughlin ended with me hanging up on her while she continued to scream ranting insinuations, against the NCF and its members.

Diana Saba

~*~*~*End of update*~*~*~

I can *not* support any support group who supports:

The Centers for Disease Control, (CDC)

The CFIDS Association, (CAA)

Jill McLauglin Ex Self Appointed Executive Director of the National CFIDS Foundation, (NCF)

Why has the IACFS welcomed Jill McLaughlin with open arms knowing full well the abuses exposed by sick patients...?

Haven't sick patients been abused enough?

I continue to support the NCF, other patients, doctors and researchers who have united for research!

Patients Need To Be Represented At CFSAC Meetings

If you would like a 5 minute spot to speak email LEFields@OSOPHS.DHHS.GOV
or call LEFields at 202-690-7594

If you can not be present in person type into an email what you would like to
say and email it to Jill McLaughlin, Executive Director of NCF along with your
5 minute spot acknowledgement to jillmclaughlin@comcast.net

There's not much time left to get your spot and write what you wish to say.

My five minute spot will be read on my behalf by Jill McLaughlin, to the CFSAC
members at the December 8, 2003 meeting.

It is as follows:

CFSAC Committee Members

Thank you for being here, today. My name is Diana Saba, I live in Tennessee,
I'm a 51 year old nurse, wife, mother of 4, and grandmother of 11, who has
been diagnosed with fibromyalgia and chronic fatigue syndrome. My life as I
once knew it, is no more. I can no longer practice my nursing skills. I have
spent several years researching online, advocating for CFS/ME, Fibromyalgia,
related illnesses and the name change.

I would like to speak to you today concerning seven issues.

1. I would appreciate CFSAC members inviting Jill McLaughlin, Executive
Director of the National CFIDS Foundation to each meeting, as a participant.
Patients need a patient represenative present at all meetings and Jill has
proven time and time again her commitment, knowledge and expertise when it
comes to representing the CFS/ME patient community. Also, patients feel
strongly that the organizations that they support as dues paying members
should have a representative on the committee, and hope this will be
corrected with the next nominations.

The NCF is the largest all volunteer, 501 (C) 3 not for profit national CFS
organization. The NCF's mission is: 1) to fund research to determine the
cause, to discover treatments and ultimately find a cure for CFS, 2) to
raise awareness, increase visability and educate others regarding the
nature, frequency and seriousness of CFS; and 3) to advocate on behalf of
patients and the families of those who suffer from CFS.

2. I would appreciate CFSAC members reading the statements of each patient,
their family members and the physicians, who have signed the A Call For
Action Petition. As I write, their are 6,401 signatures in support of
changing the name to myalgic encephalomyelitis. My signature is number 8.

3. I would appreciate CFSAC member's consideration in the name change.
Chronic fatigue syndrome is recognized as myalgic encephalomyelitis in
canada and europe, the united states department of health and human
services, national institutes of health and centers for disease control,
should also recognize myalgic encephalomyelitis and the NCW should be
recognized and allowed to continue.

4. I would appreciate CFSAC members supporting and demanding research other
than cognitive behaviour therapy, (CBT) and graded excercise therapy, (GET).
It is past time to consider research into the respective paradigms.

5. The CDC and NIH have grossly mishandled not only the funds for research
but also the research of this devestating illness. I sincerely hope decent
research is forth coming and that as members of the CFSAC, you will do
everything possible in your power to see that proper research becomes a
priority before more lives are lost.

6. I would like to know if the CFSAC members are aware of how many medical
professionals have been diagnosed with chronic fatigue syndrome? I would
appreciate it if a survey would be done to find out just how many medical
professionals have been diagnosed with chronic fatigue syndrome.

7. Finally, are CFSAC members aware that for several years now the number
800,000 has been continually referred to as the number of patients who
suffer with chronic fatigue syndrome? I would like to see a more recent and
accurate count of those who suffer with CFS.

Thank you for your time.

Sincerely,

Diana Saba
dgsaba@aol.com

Co-Cure
Information Exchange Forum
ME/CFS FM GWI
http://www.co-cure.org

Read the Saga of the CDC & NIH
Use of CFS Research Funds
http://www.co-cure.org/audits.htm

GAO Investigation and Reports
CNN and Associated Press
http://www.gao.gov/

Archives
http://www.ap.org/pages/indnews/

A Call for Action
http://www.petitiononline.com/mod_perl/signed.cgi?MEitis&101

Please take a moment and sign the petition.

The CAA ~ CFIDS Association of America, who is appointed by the government to represent CFS/ME patients, censors Marc Iversons LETTER of RESIGNATION.

Please read Iversons letter of resignation by going to Co-Cures archives message number: 1,359, dated July 13, 2001

We are seeing for ourselves censorship in all its glory.

I do not want CAA representing me.

?? ?? ?? Why the censoring ?? ?? ??

The GAO has given the CAA a bad report but they're unwillingness to answer several patients and a reputable NATIONAL ORGANIZATION such as the NCF, is not helping the CAA regain patient support.

Please don't over look the GAO Investigations.
See the Archives for the Associated Press and CNN News articles concerning CAA.
http://www.co-cure.org/audits.htm

This investigation was prompted by Advocates and Patients. Congress then requested the GAO Investigations.

Faces of CFS
by: David S. Bell, MD, FAAP

Excerpt ~
"I have no problem of not understanding the exact mechanism of the symptoms of CFS. I do have a problem with the lack of respect given patients with poorly understood neurologic disease."

The National CFIDS Foundation has made this book available to its members. There is no shipping and handling fee charges, charged to members of the NCF.
http://www.ncf-net.org

SF Chronicle
Rogue Virus in the Vaccine
Excerpt ~
Critics charge, however, that the few studies done by the government are scientifically flawed and that health officials have downplayed the potential risks posed by SV40 ever since they learned in 1961 that the virus contaminated the polio vaccine and caused tumors in rodents.

"How long can the government ignore this?" asked Dr. Adi Gazdar, a University of Texas Southwestern Medical Center cancer researcher. "The government has not sponsored any real research. Here's something possibly affecting millions of Americans, and they're indifferent.

"Maybe they don't want to find out."

The recent SV40 discoveries come at a time of growing concern over the dangers posed by a range of animal viruses that have crossed the species barrier to humans, including ...

http://www.sfgate.com/cgi-bin/article.cgi?file=/chronicle/archive/2001/07/15
/MN193825.DTL

Books to read:
Nicholas Regush ~ A Virus Within
http://www.immunesupport.com/chat/speakers/NR2000_08.cfm

Olsers Web ~ Hillary Johnson
Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic
http://www.ncf-net.org/library/hillary.htm

See Hillarys signature on the A Call For Action
Petition she is number 7.

According to DR Shyh-Ching Lo, senior researcher at The Armed Forces Institute of Pathology and one of America's top mycoplasma researchers, this disease agent causes many illnesses including AIDS, cancer, chronic fatigue syndrome, Crohn's colitis, Type I diabetes, multiple sclerosis, Parkinson's disease, Wegener's disease and collagen-vascular diseases such as rheumatoid arthritis and Alzheimer's.
http://www.mercola.com/2001/sep/8/mycoplasma.htm

The Neurological Basis of Chronic Fatigue
Syndrome, Fibromyalgia Syndrome, and Related
Neural Network Disorders
By Dr. Jay A. Goldstein
Betrayal by the Brain
http://home.vicnet.net.au/~mecfs/general/goldstein_summary.html

HHV6
http://hhv6.freeservers.com/index.html

Google Search Engine
http://www.google.com

Type in:

Myalgic Encephalomyelitis
Chronic Fatigue Syndrome
Fibromyalgia
HHV6
STAT1-alpha
91 kDa protein
37 kDa
80 kDa RNase L protein
Rhabdomyolysis
Agranulocytosis
Angioedema
Induced Asthma due to MCS, including Anesthesia
Orthostatic Hypotension
Induced Pulmonary Hypertension
Brucellosis
Bio Chemical Warfare
Manipulation of Mycoplasma Bacteria
Depleted Uranium (dust in the wind)
Perchlorate (in our ground water supplies)
Plutonium (for star wars)
Plum Island (lyme disease)
Fort Detrick (biochemical diseases)

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