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 Welcome To Bunny's Place

Song playing is: My Way

My name is Bunny, and this is my first web page so please be patient with me if you will.

I have Scleroderma, and unless you have it, or know someone that does, you have probably never heard of it. It means "tough skin, hard skin, tight skin," and it affects many many body parts. It is a chronic autoimmune disease of the connective tissue, and is generally classified as one of the rheumatic diseases. There are many different problems that are associated with Scleroderma, and on my pages, I will talk about which one's I have, and what they mean to me. 

It seems that different people have slightly different problems, but the bottom line is that it is a devastating disease. 

It is quite uncommon, and there is no cause, and no cure. There are different drugs that help with different problems, but nothing takes it away.

This website is dedicated to those with Scleroderma, and any other chronically ill person, and me! Of course anyone can visit, but this will be the focus.

I am not a Doctor, nor in the medical field, so I cannot answer any medical questions, but I can relate my thoughts and feelings to you, along with my personal problems and achievements with this disease.

On my pages, there will generally be some pretty deep thoughts. I am not one for much kidding around, although I do try to find some sort of humor in my condition.... There is still plenty to be happy about!

Before I continue, I would like to Thank God for sending me to the Best Doctor in the world! I would probably be dead by now if it wasn't for him! After quite a few years of extreme pain, two carpal tunnel surgeries, a pain specialist, and an anesthesiologist, they finally sent me to him. Not only did he diagnose me in five minutes, but he has really helped me so much ever since. He is a kind, caring person, the kind of Doctor everyone should be fortunate enough to have.

I was diagnosed with this disease in 1993, but probably had it for about two years prior to that. I was able to work until September of 1996, when I came down with atypical tuberculosis, and got so very sick. So sick, I thought I was on my way out of this world.                               

My pulmonary specialist wanted me to have one-third of my right lung removed because of the tuberculosis, but this was to me, a very serious step, and the alternative was total rest and mega doses of antibiotics, which made me sick in a different way, but so far, I still have my lung, and am done with that group of antibiotics.

I had been pretty bad the last year or so before that, but kept on working, even though every day was torture. I went on disability after that, which is now permanent. 

I have had, and continue to have a lot of bad days, but I have good days too, and have learned to appreciate each and every one of them. Even the bad days aren't so bad anymore, now that I am more used to them, and know my limitations. I am just grateful for each one I have. With Scleroderma, you never know from day to day what change will occur without notice. It's funny in a way, how glad I am, just to be alive and doing as well as I am!

With the help of GOD, and that of my caring husband, family, friends, and my Doctor, I am able to get through each day....one at a time.

I have learned to stay as active as I can around the house, along with a lot of rest. I get very, very, tired. My computer is invaluable to me, and I read a lot. I truly try not to feel sorry for myself....there is always someone in worse shape. I may be bent....but I am not broken, I may be disabled....but I am not dead!

I will touch on some Scleroderma problems from time to time, but I would prefer not to focus on illness on every page. I want this to be a place where you can come and find a certain amount of comfort with other people like us on my website. It is so seldom that you meet someone with this disease. I have only talked to one person with it, and that was recent, and I have had it for almost eight years.

You can send me your comments if you like.  I will try to respond either by email or on a new web page if I can.

I want to thank the many people who have given me the inspiration, courage, and help to do this.

Especially you Jeff, Thanks for everything!

Love and God Bless!         Bunny

copyright 8-1999

                                                                                              Disclaimer: The author of this page is not a Doctor, nor in the medical field, and therefore cannot, and does not promote, support, or recommend any particular treatment. Please see your own physician for advice and treatment. Statements made by this author are in reference to her own personal situation, and are not to be confused or mistaken as anything else. The opinions expressed by any other author are their sole responsibility.

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