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me & aip
Me and
AIP...
My days, Acute Intermittent
Porphyria!
Me and AIP.
Overview of Porphyria.
My personal history with Porphyria. An account of a day in attack.
Porphyria
& Nutrition -Diet. 400g Carbs a day.
The Porphy Home. Ways to create
a healthier, safer, and chemically free environment.
Me and my Doctor.
My personal protocol for care in the doctor's office or hospital.
Me and the World around me.
Limitations and Solutions for venturing out safely.
PLEASE READ THIS
DISCLAIMER BEFORE PROCEEDING.
The Porphy Home
Tips for those with Porphyria, allergies,
or any Chemical Sensitivity. Limitations and Solutions
for creating a healthier, safer, and chemically free
home. Site includes:
Porphogenic
Substances, The Kitchen, The Laundry, Cleaning Closet, The Bathroom, Personal
Care Products, Environmental Products, Porphy Medicine Cabinet, Porphyria
Information,
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Porphyria
& Nutrition Diet. 400g Carbs a
day.
I
try to eat my biggest meals during the day as due to this illness I have
become very sedentary. Basically if I can eat around 66g of carbs at each
fuel period ( i have 6) through out day, I will reach 400g of carbs for the
days total with no problems. I also try to have a glass of water or juice
with me at all times from am to pm.
To make it even
easier follow this guide in your own meals.
EASY CARB COUNTER
| bread/starch 15g |
fruit 15g |
milk 12g |
vegetable 5g |
Here is a two day menu using actual package
information for carb intake.
| DAY 1
10am- Oat Bran Cereal, milk- 49g, bagel 30g w/ cream cheese 2g, pear 24g,
TOTAL 105g
Noon- Cran-apple juice 16ox glass. 66g 0g,
2pm- Sandwich, 2 slices bread, 26g, mayo 2g, turkey, tomato, lettuce, onion.
UNKg, total 30grams applesauce 27g-TOTAL 85g
4pm- Cran grape drink 52 grams of carbs
6pm- Pop tarts (toastettes 2) 34g,
8pm- Myrna's rice (rice 27g, red beans 20g, potato 26g), pork loin, veggie
salad. Milk 12g-TOTAL 73grams
TOTAL FOR DAY 415g OF CARBS |
DAY 2
10am- cheerios, milk, banana, 2 toast w/ jelly and butter, cup of fruit,
coffee w/ sugar- total carbs 105 grams w/o banana.
Noon- 2 graham crackers 23g w/cream cheese frosting- total carbs 24 grams-
total carbs 47g
2pm- turkey sandwich, bread (2, Milton's healthy multigrain)56g, lettuce,
tomato, onion UNK, mayo 2g, Bear Creek Creamy Potato soup (mix) 1 cup 26
grams, oceanspray cranapple juice 51g-total 135g
4pm- chips about 20 chips 17g, caffeine free pepsi 41g- total carbs
6pm- m&m's 1/4 cup-total carbs 30 grams
8pm- Spaghetti, roll, salad, ruby red squirt-total carbs 99 grams
TOTAL FOR DAY 457g OF CARBS |
Brent's AIP Nutrition
Page
REMEMBER WE ALL ARE DIFFERENT, THIS IS MY DIET, AND
ONLY TO BE USED AS A GUIDE. YOU SHOULD CREATE YOUR DIET FOR YOUR OWN HEALTH
NEEDS. DISCUSS THIS OR ANY CHANGES TO YOUR HEALTH CARE
PROVIDER.
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Me and the World around me.
Limitations and Solutions for venturing out safely. COMING
SOON!
Porphyria
Web Links
Disclaimer
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My Favorite Porphyria Sites
CIIN
Chemical Injury Information Network
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Medic Alert
The only emergency medical information system
that connects emergency medical professionals with your vital records, 24
hours a day. |
CIO's Place
Porphyria Basics I enjoyed very much, very
creative! |
A Patients Guide to Porphyria
Dr. Moore's site including diagnosis, management, therapy,
prevention, testing, unsafe and safe drug lists, and information |
The Safe Arbor
Mary's site for Porphyria, Fibromylasia & Prayer Chat |
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