What is CJD Voice
We are a grass roots organization of individuals formed in May 1997 to
support families during and after a CJD crisis. We also discuss
various issues surrounding CJD and other related illnesses. As of
October 1999,
we have over 400 members.
Our main objectives have been
- Offering support for
families during and after CJD.
- Provide a forum for
discussion of topics relating to CJD.
- Lobby for increased
education regarding not only in the public community but medical communities
as well.
- Lobby for
increased funding for research into CJD.
- Lobbying to change the
state to state reporting practices of CJD to the CDC.
Thanks for contacting CJD
Voice from the founders, Dolly, Pat & Liz.
Submit a member profile
Click
here to send your email request to join the mailing list
Past entries before April
2004 on the Memorial Calendar have been lost, please re-submit your
information of loved ones and friends whom were victims of CJD...
click here to submit your info
