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Hello everyone, my name is Dan and I live in beautiful Connecticut. I am a single parent of one pretty cool son.
I've spent plenty of time raising
a child with 'special needs' and realize that as parents, we need to make
some very difficult and sometimes heart breaking decisions. I've been there..
Brandon, my 18 year old son, was diagnosed with PDD/NOS and Tourettes Syndrome
about ten years ago. Although our journey thru life may be a struggle
at times, and quite lonely, it is definitely rewarding. His mom left him
at the age of four and has initiated no contact with him for over twelve
years. As a matter of fact, she had terminated her parental rights stating,
"I have no children." Brandon is a quite charming kid. He is polite,
considerate and always has something to say that will make your head spin.
It's been three years since I updated this webpage. Brandon is now in eleventh grade. Times grow tougher every year as he grows older. We've been through med changes, school changes, and many PPT's. I don't want to sound like I've given up here, but I can certainly tell you that I am very near the end of every rope I have tried to grasp on to. Although we have exhausted so many options, we continue to hold on tto hope. Dawn, my patient girlfriend, has stood by Brandon tooth and nail. Many people have given up. Many people can offer no suggestions, or advice. All I can say to everyone is this. "Don't ever give up on the child that needs you most. Even if the rope ends, find a thread"
Here is our latest Picture Page. It has some new photos of our trip to Florida,
Brandon's Dinner Dance and some of our family and friends. I'll try and change
the pics or add new ones as much as possible. Just click the following link,
and please give it a little time to load as I still don't know how to make
thumbnails.. Sorry.
Our Picture Page
On May26th my second Mother passed away from a long battle with Cancer.
Obviously it was a very difficult time for anyone who knew and loved her. She
was a great person. Wife, Mother, Stepmom and friend. It was only the second
funeral that I have attended, the first being my Paternal Mother almost 20
years ago. I thought I could handle the service knowing that Ann was in a much
better place than anyone on Earth. I did well until the Pastor read a passage
my Father had written just days before the service. I have included it below.
Thanks to everyone who was there for him and Ann during the final days and
hours they shared together.
Well, that's it for the updates, I'll try to do this on a monthly basis. Until
then I urge anyone with a child that has PDD/NOS or Tourettes to e-mail me with
any stories you'd like to share. If you'd like any advise on IEP/PPT's then
drop me a note. I've got so many "Your rights as a parent" flyers that I could
wallpaper my living room. So I do have a good background in handling and
dealing with the system. Also, if any of my links lead you nowhere or to
places that I don't have listed please let me know.
I would like to thank those of you that have stood by us and showed us support
and understanding. Friends and family, you folks that have e-mailed us. Those
that have entered our lives and since then continued their own
journey forward. We wish you all peace and happiness.
These are some of my favorite sites
that have information on PDD, Tourettes and OCD. If you come across any sites
that you think I should list, please send me the link and I'll gladly add it.
Welcome to the Tourette Syndrome Home Page CT Disability Resources CT State Independent Living Counsel Early Intervention~Parent's Guide The Individuals with Disabilities Education Act Amendments of 1995 Individuals With DisABILITIES Education Act~Table of Contents IEP Individualized Education Plan FAQ Money Matters~Educational Financing Information EleanoraG's web site This is a great site worth checking out! But please come back when you're finished!!
God will always give us new flowers.
My Silent Prayer
These pages are dedicated to
my Mom. If she could have seen the beauty of her Grandson at birth, if
she could have only held him in her arms and kissed him good-night. If she
could only be here to give me advice about what to do..... If she could
only be here for me. I'd still have to do this on my own!! Thanks Mom,
I know you can read this, I know that you see him, and I know my son goes
to bed with kisses on his cheek every night. And I know that it's from
me and you. I'll love you forever. We'll both see you later!!
Let us know what you think about
our page. You can send us mail by clicking here... --->
Septblu@aol.com
Click here to go on......... PAGE 2 "Some fun links and pictures" Or you can go to......... PAGE 3 "Sam's Place...A really cool place.."
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Last update : June 3, 2000 10:30 am.
© Dan Bohner, 1997
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