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[Dan & Brandon]

Hello everyone, my name is Dan and I live in beautiful Connecticut. I am a single parent of one pretty cool son.

I've spent plenty of time raising a child with 'special needs' and realize that as parents, we need to make some very difficult and sometimes heart breaking decisions. I've been there.. Brandon, my 18 year old son, was diagnosed with PDD/NOS and Tourettes Syndrome about ten years ago. Although our journey thru life may be a struggle at times, and quite lonely, it is definitely rewarding. His mom left him at the age of four and has initiated no contact with him for over twelve years. As a matter of fact, she had terminated her parental rights stating, "I have no children." Brandon is a quite charming kid. He is polite, considerate and always has something to say that will make your head spin.

 

** UPDATE :-) ** It's been three years since I updated this webpage. Brandon is now in eleventh grade. Times grow tougher every year as he grows older. We've been through med changes, school changes, and many PPT's. I don't want to sound like I've given up here, but I can certainly tell you that I am very near the end of every rope I have tried to grasp on to. Although we have exhausted so many options, we continue to hold on tto hope. Dawn, my patient girlfriend, has stood by Brandon tooth and nail. Many people have given up. Many people can offer no suggestions, or advice. All I can say to everyone is this. "Don't ever give up on the child that needs you most. Even if the rope ends, find a thread"

** UPDATE :-) ** Here is our latest Picture Page. It has some new photos of our trip to Florida, Brandon's Dinner Dance and some of our family and friends. I'll try and change the pics or add new ones as much as possible. Just click the following link, and please give it a little time to load as I still don't know how to make thumbnails.. Sorry. Our Picture Page

 

** UPDATE ** On May26th my second Mother passed away from a long battle with Cancer. Obviously it was a very difficult time for anyone who knew and loved her. She was a great person. Wife, Mother, Stepmom and friend. It was only the second funeral that I have attended, the first being my Paternal Mother almost 20 years ago. I thought I could handle the service knowing that Ann was in a much better place than anyone on Earth. I did well until the Pastor read a passage my Father had written just days before the service. I have included it below. Thanks to everyone who was there for him and Ann during the final days and hours they shared together.

" We all have great recollections of Ann, some have been shared with us today. I would like instead to send a thank you note. When we receive a precious gift we want to send back a thank you note. Sometimes, because of a busy time, we often forget to do this. Here is my thank you note..... to the Lord.

Thank you Lord, for allowing Ann to visit this Earth 73 years ago. It wasn't a very friendly world in Ann's early years.... a depression, hungry times, hand-me-down clothes and shoes..... but the Lord was good to Ann and she turned to the Lord. It gave her inner strength and compassion for others in later years. Thank you Lord for leading her to the John and Lillian Williams family, with their children Helen, Lillian, Emma Jane, John and Frank, whom they loved as their own. She lived with them many years, loving them and also loving her own six sisters and two brothers living with their Mother and Father. Yes, there was alot of love in Ann's life. That was the reason she was such a loving person. Thank you, Lord. Thank you Lord for allowing her to marry and bear four children, Hal, Debbie, Donna and Don. She taught them to love the Lord also. Sometimes children's choices don't always turn out like they think they should, but she never gave up on them. She gave them support and loved them through any situation. She loved them until her last breath. After 31 years you took her husband Harold home to you. She perservered. Thank you Lord. Two years after you took my wife Jean to your Heavenly Home, you smiled down at Ann and I again. Thank you Lord for giving me another chance for a loving wife. My three children, Wally, Beverly and Dan were loved by her as her own, and they loved her too. Thank you Lord. Grandchildren were special in her life. She loved them as much as they loved her. She taught them much and they will remember her forever. And Lord, when disease and pain raked her body and put so much suffering on her that she could bear no more........ thank you Lord for taking her home. I know her suffering is over and she is in your care. You have answered my prayers. Thank you Lord."



One or the other must leave,
One or the other must stay.
One or the other must grieve,
That is forever the way.
That is the vow that was sworn,
Faithful 'til death do us part.
Braving what had to be borne,
Hiding the ache in the heart.
One, howsoever adored,
First must be summoned away.
That is the will of the Lord,
One or the other must stay.



Well, that's it for the updates, I'll try to do this on a monthly basis. Until then I urge anyone with a child that has PDD/NOS or Tourettes to e-mail me with any stories you'd like to share. If you'd like any advise on IEP/PPT's then drop me a note. I've got so many "Your rights as a parent" flyers that I could wallpaper my living room. So I do have a good background in handling and dealing with the system. Also, if any of my links lead you nowhere or to places that I don't have listed please let me know.

Many people have a hard time accepting and dealing with children with disabilities. If you are one of those people then you are the one that needs sympathy. Sympathy for your ignorance, because you are truly disabled. Try offering understanding and support, because if you look to your left, or your right, you will find many of those children. Standing, sitting, and waiting for you to offer them opportunity, love and understanding. Try it sometime, the smile you recieve in return will warm your heart forever.

I would like to thank those of you that have stood by us and showed us support and understanding. Friends and family, you folks that have e-mailed us. Those that have entered our lives and since then continued their own journey forward. We wish you all peace and happiness.

These are some of my favorite sites that have information on PDD, Tourettes and OCD. If you come across any sites that you think I should list, please send me the link and I'll gladly add it.

Risperdone Information

PDD Support Home Page

Tourette Syndrome Information

Welcome to the Tourette Syndrome Home Page

Obsessive-compulsive disorder

The Disability Link Barn

CT Disability Resources CT State Independent Living Counsel

Early Intervention~Parent's Guide

The Individuals with Disabilities Education Act Amendments of 1995

Individuals With DisABILITIES Education Act~Table of Contents

IEP Individualized Education Plan FAQ

Money Matters~Educational Financing Information

EleanoraG's web site This is a great site worth checking out! But please come back when you're finished!!





[ROSE]

God will always give us new flowers.

 

My Silent Prayer

These pages are dedicated to my Mom. If she could have seen the beauty of her Grandson at birth, if she could have only held him in her arms and kissed him good-night. If she could only be here to give me advice about what to do..... If she could only be here for me. I'd still have to do this on my own!! Thanks Mom, I know you can read this, I know that you see him, and I know my son goes to bed with kisses on his cheek every night. And I know that it's from me and you. I'll love you forever. We'll both see you later!!

[Crunch]

Crunch and The Beanie Babies



Let us know what you think about our page. You can send us mail by clicking here... ---> Septblu@aol.com

Click here to go on......... PAGE 2 "Some fun links and pictures"

Or you can go to......... PAGE 3 "Sam's Place...A really cool place.."

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Last update : June 3, 2000 10:30 am.

© Dan Bohner, 1997