Fundraisers

IT IS TOO LATE FOR BRIANNA TO BE TREATED with Gene therapies. SHE HAS SEVERE WHITE MATTER DETERIORATION AND DEEP SECONDARY ATROPHY AS WELL. ALONG WITH THE FACT THAT SHE IS 11 AND THE RESEARCHERS ARE ONLY ACCEPTING THEM TIL AGE 9. WITHOUT GENE THERAPY THESE CHILDREN BEING BORN WITH CANAVAN DISEASE HAS NO CHANCE AT LIVING. UNTIL NOW. The hope with the new break through being found in GTA. PLEASE HELP SUPPORT THESE CHILDRENS FIGHT FOR LIFE. WE NEED YOUR HELP.

Those of you that read the progress page know the need for funding for GTA. To help with this cause you can send your tax deductible donation to NTSAD 2001 Beacon Street Suite 204 Boston, MA 02135 Make checks out to NTSAD-Canavan Research Fund. Thank you for your continued support in this research. It could be the only thing left for hope for Brianna. Check back here often for we will be hosting a benefit for this new drug in the near future. Information on it to come soon.

We are always looking for new ideas for fundraisers if you have anything you feel would help us out I am interested in hearing about it. I thank everyone for their support in our fight for Brianna's life against Canavan disease.

Contact me: Yulinda Burkett (Brianna's mom)

Email......... YDB739094@AOL.COM

Phone.........419- 637- 7586

Fax.............419- 637- 4336

Mail............Brianna Burkett Canavan Fund

P.O. Box #1

Gibsonburg, OH 43431.

(Donations can be made to this address)